General Chat

How about a car boot sale? We could ask around - I actually did one once and hated it. But, so do lots of others - we could ask friends and family if they have anything that they are going to chuck away and we could hold our own?

When you think about it, its not about money, its about raising awareness. We could then donate money raised to Jen's memorial fund for Stephen.

We could ask if we could put leaflets inside local papers. If you were flicking through yours, and you saw a leaflet with big block capitals: FIBROMYALGIA it would grab your attention immediately wouldn't it?

Hi Puss. Your friends and family could have a de-clutter of your houses and sell anything unwanted on ebay. We do it all the time, a de-cluttered house is a de-cluttered mind :-))) Good luck

Lorraine, Rebecca & Steve Thanks for your ideas. I've been that busy tapping away I'd not looked to see if anyone had replied. Keep em coming.

Hi Lillyann and Lorraine had a quick meta search there are a lot of support groups in America but i did find an MSN one thats uk based http://groups*msn*com/FibromyalgiaSupport dunno if that helps girls Sxx

thanks heather and steve lilly ann brill idea cause i guess like things linked to it like ms , its only pain relief that we already know about , and unless we walk round with a morphine drip the pain is here to saty.

I noted ebay doesnot have any charity listed for Fibromyalgia you could contact ebay and request that a uk Fibromyalgia charity is added then sell any items you have, also that way you could ask people you know who sellon ebay if they would give a % of what they sell to the charity. I think as long as it a registred charity it should be ok, Id be happy to give a % of any sales I do

thanks coylass x good idea

Hi folks one of my family suffers with this complaint so may I wish you all the luck in the world what ever you manage to achieve well done Girls xxxlove Howie

steven just had a look breifly at that looks brill will certaINly go on there later x

Need all these fab ideas on a list, so printing the thread off. This is great peeps.

glad to be of a small help Lorraine hun xx

Hi peeps Just been on Fibro assoc uk website. They have contact names of local support groups. Of course, they are not local enough for us. Sent an email re raising awareness locally. Will let you know when I get reply. Lilly xx