General Chat

Capsiplex is made by Scottish firm Advance
Health.

yes thanks goldengirl, dont mean to sound like a hypercondriac lol but my hands wrist and knees look mishaped and terrible pain but was diagnosed as osteo which is a lot milder i know what you have is very painfull xx

Don't know about being less painful as I'm
supposed to have osteo in my knees, didn't
even know you could have both but have been
told so. Yes my hands, toes,etc mishaped.

My GP thought it was RA, but never got referred, and in the meantime, the leukaemia butted in and took priority. The tests and Rheumatologist post AML say I don't have RA, which is a relief. The Top Doctor Haemo man thinks that the severe escalation of the bone and joint pains was likely to have been a precurser to the Leukaemia, but they don't know. People who have presented that way haven't been studied properly, so it is anecdotal, and none survived the treatment.

What has also happened is that as my immune system has improved, so has my bone and joint pain increased, and it is definitely cyclical. Every so often, I get a course of steroids, and it is pure bliss, lol.... I am moving into that phase again, now. So there has to be something inflammatory/immune going on, according to Rheumo, GP and Haemo.... but we don't know what it is. All very frustrating to say the least.

My bones are mostly very very strong, although I do have damage to two of my vertebrae, my right shoulder and left ankle/foot/lower leg causing osteoarthritis, all from sporting or work related accidents..... and my cholesterol is excellent (2.9 fasting) I don't have diabetes, and all my organs, despite throwing a hissy fit last year and going on strike/go slow for a bit, are all very healthy. ;¬)) My hands get very sore and clumsy as well, at times.

So I can understand why there looks to be nothing much wrong with me except being overweight, lolol I look the picture of robust good health, and did throughout my treatment. Well, there were a couple of times, and no hair was a bit of a giveaway, lolol

Bet you wished you hadn't asked now, aren't you? lolol

Love

Daff xxxxx

Hi Daff, My Kenalog (steroid injection) did nothing
for me this time,but 2new knees and 2new hips
would work a treat I think. Emmax

hope you get some relieve golden girl xx

Daff lol thats about where we were at when you came over, i wonder wether because you have eaten a godd balanced diet etc thats what has helped you fight probably sounds obvious now ive typed it, but Sdads surgeon reckons as he had is cancer in 96 he shouldnt have been here either , my mum is a goold old fashioned cook and there fit as fiddles normaly, i suppose it does help, have you ever thought of writing a book daff bbecause you wouldnt be here now if you hadnt of persevered with those tests, and when we were together you would have been seriously ill yet you looked great xx

sorry bout me doubling letters up think its time i logged off the dog is meowing too so must need my bed lol xxx
love to you all xx

just try and eat healthy rather than diet , make sure you eat 3 meals a day or even just snack healthy through out the day , pill dont work in long term coz they are fake ( they do work but you will have to be on em forever) .. im overweight but i wont and i refuse to diet , im happy with meself lol xxx Daff xxxx Puss xxx orf to bed .. got poopy work tomorrow x
ps i have never owned weighing scales coz they are a major problem with ppl that have weight issues , chuck em in the bin thats what i say lol

night our fairy yep im taking your advice can i have a dounut then lol xx

Puss as i work in sainsbury's they make the best donuts in the world , i get some for the meat that we will deffo have lol xxx

I am off to bed soon, myself... even though I dozed off for a couple of hours earlier, but it is the painkillers! And yes, that is a problem I have often had, looking absolutely fit and rudely healthy, and then tests show that I am actually quite poorly... I had pleurisy 5 times in 18 months a few years ago... and went to the GP with earache each time... I wasn't coughing at all! I had given up smoking, and that was the catalyst, initially.

I might write a book yet, lol

Emma, that is a shame, has it always worked in the past for you? Have you been recommended as a bionic woman candidate by your GP? Sounds like you need it, quite badly.

Love

Daff, whose blurreds are starting whirling too xxxxx

edit to ~~~~~ and xxxxx to the Donut Fairy, lol xxxx

Consultant spoke about knee replacement two weeks
ago. Steroid after draining fluid off knee usually works
but apparently injection now half the dose because of
side effects. I have nothing to complain about really as
a lot of people worse off than me but some days I feel
sorry for myself. Emmax Goodnight all

yes agree golden girl xx

well 15th day of cereal diet and have put the 7 pounds back on i had some wine 7 days ago so can only think its that lol xx