General Chat

hi there
people on here seem a real friendly bunch so im after a bit of advice my son after 6 and a half years has finally been diognosed with borderline aspergers and social communication learning difficulties im relieved he has finally been diognosed as ive had it all thrown at me about his behaviour ie its his age its because hes a boy he will grow out of it etc the classic one was by the senco at his old school was it was because i was a single parent now he has moved schools they picked up on it near enough straight away i was just wondering if any other parents have children out there with learning difficulties and how they cope

thank you kirsten

HI Kirsten

MRS santa Ladylol Pussercat is the one you need to speak to, her son has aspergers.

She's not here at the moment, but she will be back later, she's lovely and will help with any questions you have.

Good luck

Hi Kirsten my 9 year old son also a autistic spectrum disorder. I'm just on my way out to pick my children up from school so can't stop but pm me any questions and I will be back later and I can help you with anything you want to no or to just listen if you need to let of steam.

Julia

Hi Kirsten
I have a daughter with Autism, learning difficulties & challenging behaviour. I know hat you mean when you say its all been thrown at you, When i got the DS for our daughter all these words where used but never explained
www.nas.org.uk has a wealth of information. But I think the best advice come from other parents.

Pm me any time
Sharon x

Kirsten

am still trying to get laddo diagnosed has now been shown by tests he has poor short term memory but have been waiting for over 6 months for an appointment for social and development team and had to fight to get that referale.

Had the same as you, hes a boy , hell grow out of it.


Good luck and now you have a diagnosis hopefully
schools will take more notice of you and give him the help he deserves.

d x

Kirsten... I have nudged a thread up for you, some of the people who posted may have left GR, but there are a lot of us still here.

My 8yr old Grandson has dispraxia.

Nudging this up

xxx Daff

hello kirsten, all sounds familiar, but one thing i have learned is it will get better as he gets older.
David my son is no16 he was diagnosed with aspergers at 12, haven spent 10 long depressing years off appointments with various social workers mental health workers teachers you name it.
i noticed the change the night david had is final mmr injection, he had a tempersature and from that night on after being a placid baby, he just screamed constantly didnt sleep bang his head of walls, stoped playing with toys, no eye contact .
the first few years i was told i was neurotic, when david started school, i was accused of neglect, because he took dry bread for his lunch, thats all he would eat, as he got older junior age he wanted to be dead although didnt understand that dead meant no more, he hid from compony hid behind curtains in restraunts on special occasions ate now only sausages or burgers destroyed every thing he touched, ie; a new kitchen the council had put in, they dont like change, he attempted suicide a lot but thankfully never managed, i was a single parent by now, had to give up work as he stopped going to school, all these sessions seem to make him worse they said he was a naughty boy, thankfully one day a new lady came out and watched david show no remorse as he scalded his sister, she said david has aspergers, i was at the vege of a breakdown by now, if that lady had not come that day i too had planned to take my life as i couldnt cope any longer watching my blue eyed boy suffer anymore, after the diagnosis throgh my own research i have learned how to handle david how to speak to him and communicate, he spent years in a special school, which we moved to 50 miles away from my freinds and from that day to this has changed completly he is now at college doing music, uses trains and asks how i am now and again and allowes me to hug him, i never thought i would see this day with him, i expected him to kill himself or damage, luckily my new husband took on david and supported us both,
Kirsten dont settle for anything less than 100% help keep fighting , and one tip i always tell people is when you say something to your son, ask him if he understands what you have just said, believe me you will be surprised at how confused he is
one thing i asked david is what does pull your socks up, and she bit my head of , he answerd latterly, wish you all the luck in the world , i now have the energy to be there for others please feel free to contaqct me whenever

lorraine xxxxx

ps im dyslexic hop you understand me , people on here are used to it xx hope you enjoy genes xxx

I could understand it hun. Well done puss, I knew you would come up trumps for Kirsten.xx


And ((((((((((((((((HUGS)))))))))))))))) for all you've been through and are going through now. YOu are one special lady.

ahh thanks tw, having people like you and all has helped me a lot just being there at the press of a button lol xx

I had a an adult aspergers syndrome sufferer working for me and he often made unwarrented remarks about colleagues and every time his shift changed from earlies to lates he was physically ill and unable to face work. Once he was diagnosed at 30 years old we worked with him to ensure that we could bring some routine into the workplace and remove him from situations that would cause him issues. We also used the services of the Oaklea Trust to help the process. (although not local to us their website was still of great help). As your son grows up he will need support and routine but there is nothing to stop him leading a perfectly normal life and hold down a good job. You know where all your GR friends are if you need to talk

aw Pusser hun... My eyes are leaking... think I've got your man flu!!

Love and (((((hugs)))))

Daff xxx

Colin, that is so good to hear. So few employers even attempt to understand, leave alone encourage co-workers to access information and resources that will actively help provide a good working environment for all staff, including those people label as *different*

Love

daff xxx

i work in sheltered housing for mental health.We have a young lad in there with aspergers.We have more trouble with him with the damage he does.He has to empty everything.(washing up liquid,soap powder,disenfectant)everything then has to be washed out.He throws everything down the toilet(carrier bags etc)we have had to have the drains unblocked many times.He has just ripped all the tiles off of his shower room.He has cut the cord off of the light switch to the shower room.I can fully understand what you mums are dealing with. Annie

well done you colin for helping him, this is a fear of mine, when david starts work, he once told me he couldnt understand why groups of kids played together, so he stood by them and listened to what they talked about, so he could go up to another boy and talk with him, he got beat up for being a freak after school by ten boys, that day i vowed to move and never let that happen again, hence the move, although david was at a unit he still atended main stream school, and when a teacher shouted at him, boy was i up there and did i fly lol, they soon learnt how to talk to my boy

n for krysten

There is a good article in 'Inspire' magazine that features a man (doesn't say how old but his picture suggests in his 20's) that has Aspergers and has been helped into work by Jobcentre Plus who provided him with a Jobcentre Plus Partner who gave him extra supprt and training. Pick up a copy of 'Inspire' if you can (its free from the Jobcentre-I am a regular there now i've been laid off by the airport!) or drop me a pm with an e-mail address and i will scan the article and pop it to you on a word doc

Whilst working as a secretary on a Brain Damage Unit within a psychiatric hospital, where I worked for thirty years, we had a young lad brought in with Aspergers. They couldn't handle him elsewhere and we had specially tranied staff for the job. His family were unhelpful, did moire damage than good and virtually abandoned him. He was difficult to begin with but gradually we got to grips with him - I say "we" cos although I was only a secretary, my office was right in the unit and I had patients in and out all day and was part of the whole team. Peter eventually was discharged into the community and as far as I know is still living there and enjoying his life so there is hope at the end of the tunne;l. You just need the right guidance, the right people to help and put you on the right road - not saying it's easy by any means, we had some very hairy moments with him on and off along the way. We were all very fond of him.

thanks \ollin will pm you xxx

meant to add depression is a big part in aspergers, my son has it but doctors dont want to go down the route of meds at his age its hard when the hospital did though, he would forget them i forget my own so mayby its worth trying again with dr specky here kirsten have sent you a personal message if you click on mesage it should be there, love lorraine (puss)