General Chat

i'm fed up of feeling so shattered all the time.and suffering with painfull limbs....and befor you say it, i'v seen my GP had lot's of bloods don and all been ok.i wake up in a morning and can hardley move my body the pain in my heels is unbearable sometimes.i even find it difficult to walk,untill i start walking around it seems to subside although it 's still there but not as bad as when i wake up.i constantly feel i'v got the flu.i'm forever popping pain killers to keep me going threwout the day.the only time i don't ache is when i get into a red hot bath.it constantly pulls me down...i do go to work and don't ever have time off becouse of it. i don't mean to moan as i know lot's of people have worse things to put up with,but i was just wondering if anyone else had experienced what i'm going threw.as my doctor does'nt seem to have any answers......thank you for reading gwyneth

Sunshine read the Fibromyalgia thread, thats how i used to be and it took 9yrs to find what was wrong.xxxxx

I was just going to suggest you read the fibromyalgia thread but was beaten to it. Ann Glos

Hi Gwyneth. Sorry to hear you sound so bad. This may sound like a silly question but, do you have an electrical items plug in, in your bedroom? Tv, alarm, etc etc. Some people are affected by too many electrical items around them, particulary in the bedroom if they are close by. I felt similar to yourself some time ago and i removed my radio alarm clock (it had a LED) and after a few weeks i started to improve. Give it a go. deb

i agree with wendy i had this dianosed today and reading your thread it looks like you need refering to a rhematolagist , remember your doctor is just a GP, it sounds like you need to see a specialist lorraine xx

Sorry Ann.xxxx

Gwyneth, I do feel for you, I had the same a long time ago, and insisted on referral to Hospital, even though the blood tests were fairly normal. I got a diagnosis and relevant treatment. Unfortunately, It's back and this is the first time I have taken time off work with it. But with the backup of specialists I've got an emergency appointment tomorrow. You do need to get something sorted, life is too precious! Suex

thanks all for replying so quick..and i'm relieved to hear that someone out there has experienced the same thing...i don't have no plug ins in my bedroom,as my doughters astmatic and i have to be carfull on what i use

I was diagnosed with ME ten years ago and a lot of your symptoms sound very similar. However, all your replies state Fybromyalgia and they all know what they are talking about obviously. I noticed the pain in your feet thing is the same as something I seem to have developed and think I might take some of the advice you have been given. When I have been sitting, even with my legs up high or having done circulatory exercises, when I stand the pain is unbearable and it only goes when I 'walk it off'. It was a bit embarrassing in an Italian restaurant the other day cos I stood up and couldn't walk right away. Please make sure you see your doctor because if you are tired you don't want to end up coming to a standstill. I am back at work as some people with ME are a lot worse than me but I do have setbacks and had two months off in February this year.

wendy, where is your fibromyalgia thread

hi gwyneth, try omega3 capsules... if no help after four weeks, then do ask to be referred to a specialist. bryan.

Sunshine it is Julieanne's thread will nudge it for you.xxxxx

Eisy 262......that's how i feel' i have a very demanding job and whilst i'm doing it .i'm ok but once i stop i can hardley move my body

Sent you a PM, hope it's useful Suex

hi bryon,i'm taking them already..as someone suggested them to me.thanks anyway........

eisey sorry to hear you suffer to apparently the conditions are very simular and they are seeing if there is a conection, i know its hard dont be embarresed , take care lorraine xx

Sunshine, Like I said the people diagnosed with Fybromyalgia know what they are talking about and its worth bringing it up with your GP. Its also worth thinking about though if you don't get any joy. ME symptoms are very similar, especially feeling like you have flu, tired all the time (chronoc fatigue) painful limbs etc. the annoying thing is you tend to look very well and it is frustrating when you are told how well you look when you have just had time off work and feel like a wreck. I tend to keep going and it is only when I stop, like at weekend that I find it a struggle to get moving again. I had numerous blood tests and nothing shows up, its the nature of the illness. The only thing they found was some food allergies. There is no real blood test for it. I seem to be improving and have long spells at work. I don't have odd days off sick, I tend to be able to go to work for a long time and then suddenly come to a standstill. See your GP and write down your multiple symptoms before you go as that was how my GP diagnosed me and I went to a specialist who confirmed it. Keep your chin up.

Ladylol Pussycat, Thanks for that, I didn't know about the possibility of a connection. I need to do some more homework on it! Thanks again.

your welcome eisy my cousin has exactly same symptoms as me she has ME and i have fibromyalgia xx

And my symptoms are very similar, And I have RA. Suex