General Chat

I have just been to see my friend Alex.(some of you may remember we didnt think she'd make it?) She is still alive and breathing and has come out of the PVS ...and is now a 22 year old woman , with the mind of a toddler. she doesnt know who she is, what day it is , or who anyone is, and just keeps calling out for 'daddy'. Absolutely soul destroying.Anyone had any experience of this? jess x

I had to keep a tight rein on a thought that kept going thru my head. I kept thinking...... ~stop messing about Alex, it isnt funny anymore~ it was like she was playing at being a child. I feel really mixed up about it

Jess.... my heart bleeds for her, her family and friends. Will she improve or is the brain damage irreversible? Jean x.

Oh Jess, my heart goes out to you all, family and friends alike xxxx Elaine xxxx

Oh Jess, How awful for you. I can't think of anything to say, just that even with the mind of a child she will recognise affection. Gwynne

OH Jess, how awful for you & her family. Do the Drs think she will grow up or will she remain a child? I'm sending you all lots of healing thoughts Vivienne xx

Jess, How difficult it must have been for you. What will happen to Alex and does she recognise anyone? Big hug to you for making the visit. Sue

Sending hugs, I don't know what to say. Love Mags xxx

She spoke, but it was absolute scribble- didnt know who anyone was, and having whittled and whittled ''where's my daddy'' for half an hour, when he walked in the room, she asked him the same. At one point she and I were sat on the bed, riding horses, bouncing up and down , trotting, then galloping...the nurse thought i'd lost the plot i think.It made her laugh though. Will she get better? she is a million times better than 8 weeks ago, but, No, we'll never get Alex back

I've come home and its a bit like a dream ...a funny dream. Imagine a grown man dressed up as a little girl, getting up to all sorts of naughty tricks ( a bit like in a panto) Dont know what i expected, but it making me feel very odd.

Oh Jess my heart goes out to you and Alex's family. Hugs Julie x

Oh Jess, sending a hug to you and Alex and her family. Claire xx

Jess my uncle (you may remember he ran away when he was in hospital) he was found with head injuries how he got them we still dont know and as he is a diabetic and was without medication he has brain damage. Dad says he is like a child again in a 47 year olds body. Dad says I wouldn't recognise him or be able to understand him. heartbreaking for the family especially my nan who because he has had to be moved to a home in Stoke that can cope with his needs will never see him again. Think you probably helped her by playing horses what girl doesn't like doing that. Only thing is she probably doesn't remember what she was like. Admire you for going to see her I still haven't been to see Kev brings back memories of how my Gt Gran was and I was frightened of her. Just remember you are doing her good . d xx

Update: Just had an E-mail fron Alex dad, to thank me for going, and asking me to suggest anything i can in the way of rehab kind of activites..Any ideas anyone? where would i get 6 piece adult kinda jigsaws?

Jess - have a look at the RNIB site for the jigsaw you are on about..... or ask at an Adult Education Centre and see if they can lend you one! xx

Oh jess my heart goes out to you and Alex, you are one hell of a friend - I wish I had a friend like you and I'm sure many others would say the same I hope that you see improvements and I will keep sending positive thoughts to you and Alex. Joanne xx

Jess my heart goes out to you. When I read cases like this I always think There but for the grace of God go I and only hope it never happens Maureen x

Jess love prayers and positive thoughts for you Alex and her family Valxxx

Jess my heart goes out to you and all family and friends there are no words to help So here is a big ((((((((((HUG))))))))))) for you xxx Howie

Jess my heart goes out to you all . Take Care Germaine xxx