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Question for Fibromyalgia sufferers pls .....
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McAnne's Gahan-Crazy | Report | 17 Jan 2007 21:36 |
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Thanks Julie Anne I went for blood tests last Friday - altho they couldn't do them all as GP forgot to tell me one of them was a fasting one - so now my full set of results will be delayed by 5 days as I have to have the fasting one done this week ................ Will keep you all posted xx |
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McAnne's Gahan-Crazy | Report | 17 Jan 2007 21:43 |
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Julie Anne - I get it hun lol Yes I have been told FM doesn't show on bloods - but I haven't discussed FM with GP yet - it was only reading on here after I had my initial consultation that made me wonder. For now he is checking out any arthritic disease ................. |
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***Julie*Ann***.sprinkling fairydust*** | Report | 17 Jan 2007 21:44 |
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ok thanks it doesnt show up FM on bloods, only thing close to it is they can detect swelling of joints from bloods, the points my gp told me for fm are backs of shoulder either side then go down to just below on tops of ribs , base of spine, either side of base like hips, then either side of knee joints ankles and wrists, oh and base of skull either side just under hair line o--------------o shoulders ( *** 1**** ) (**** 1**** ) o*** 1***o ribs ( *** 1**** ) ( **** 1**** ) o**** 1 *** ohips the 1 down middle is spine dont know if this explains it better lmao |
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Sally | Report | 17 Jan 2007 22:57 |
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Ann sorry to hear you are poorly. I have been suffering from fm for many years!!!!!! had tests done for everything under the sun.it does not show up in blood tests,and it is now called the silent disability.for by all the other symtoms,you can also suffer from an internal heat , you are cold on the outside which makes the pain worse,but because of the internal heat you cant cover up,as you then feel claustrophobic,,,which in my case caused me panic attacks,,,,which I hope Im not causing you now,,,,, I have it from head to feet, and recently spent 6 weeks in bed because of it,and another 4 weeks to get back on my feet,,still struggling a bit,,but getting there,,,,the worse thing for me was the not knowing,,,as my imagination was on overtime...my GP told me I was suffering the same pain as someone with arthritis,,only all over my body,,,,I cant have painkillers as im allergic to them and anti inflammatories,,,although there are a lot out there that do work for many people,,I just have a poor system,,,,massasge helps for a bit ,,aromatherapy...and screaming at OH works wonders!!! but the only advice I can give you is dont give in to it ,,it's not easy , I know, you have your up days and your down days,,,I have a worpt sense of humour,,thats how I get by,,and my lot are nuts too , so there a great help. I really do hope you dont have fm.and I am an oddity,so take this with a pinch of salt.but as I said before there is a lot of great medication out there....and one day there will be something I can take,,,in the mean time,,,,theres always the bottle , ha ha . good luck , will think about you and offer up a prayer. Sally x . |
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McAnne's Gahan-Crazy | Report | 17 Jan 2007 23:02 |
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Sally - thank you for that .................. I always feel like I want the warmth of a jumper on my arms - but no where else - get hot flushes a lot these days anyway so that doesn't help - half the time I need to be in short sleeves or sleeveless tops ............... can't win LOL Take care and I hope you get back to some normality soon xx |
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***Julie*Ann***.sprinkling fairydust*** | Report | 17 Jan 2007 23:16 |
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you know what its a comfort to have the symptoms understood, i thought i got hot flushes didnt know that was another FM symptom, but i get ready for work in morning and have to change before i go out cos my top is damp, then my arms are cold but im scared to go out in a coat cos im so bleepin hot, it really helps to share and read others doesnt it |
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Purple **^*Sparkly*^** Diamond | Report | 18 Jan 2007 01:13 |
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Issue no 3 of 'that's life' (have started doing the puzzles again to wake up my brain, and for when the computer doesn't work!) has an article on FM - the poor woman was first sent for tests in case she had CJD! I know I am a mad cow, but thank goodness the doctors never suggested that to me when I first went with my symptons!! It says that there are around 14,700 new cases in the UK each year and around 90% of those affected are women. Although the causes are unknown, suggested reasons include a lower level of seratonin (a feelgood chemical in the brain), viral infection, disturbed sleep patterns, and emotional or physical trauma. |
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***Julie*Ann***.sprinkling fairydust*** | Report | 21 Jan 2007 18:53 |
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my gp says its emotional and physical trauma causes, and though ive heard anti depressants may help with seratonin, he refuses to give me anything like that |
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Purple **^*Sparkly*^** Diamond | Report | 15 Apr 2007 02:13 |
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nudging for Kaz |
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