General Chat

Nope I didn't know about it either ..
it was always one or the other but ...apparently not. Mind I didn't realise until 10yrs ago that psoriasis was heriditery ...

what can I say on it all

Nothing as There is no known prevention.

Uzzi,what are the symptoms of this?

no theres no prevention uzzi .. ive had it a long time.. the psoriactic arthritis is painful ..

Jane it is arthritis with psoriasis over the the joints

Babycham I am so sorry for you. actually am sorry to bring this to light this way but I'm a bit peed off about it ....


...sorry .....

no problem uzzi im used to it after all these years ... but my heart goes out to anyone who as it .. this thread could help peeps understand it.. im sure theres a few on here with it..

Hi Uzzi ,
my sister has this too
she's had it from about 15/6 yrs old she's now 77 yrs old

~~~~~~to Igee.
Hazelx

hi i have just been told i have arthritis in the knees.no cure just pills.
my mother had it as well so i guess she left me something to remind me of her,well thats the way i look at it.lol its either laugh or cry as
it is very painfull especially in cold weather.

oh laughalot yes it's a good way to look at it.

personally I am not sure who to blame for the arthritis as neither parent or grandparent suffered that bad but psoriasis which I didn't realise was hereditary till I got it, well my dad suffered badly so yes I will thank him for his legacy to me, Awww I loved me dad but would rather have had a few grand instead lol

Hello Uzzi

As I said previously my mother had psoriasis. I escaped that but got rheumatoid arthritis instead. These as you probably know are auto-immune diseases and I'm currently on immunisuppressants (that was a long one) tablets which for me work very well, not sure if they work for psoriasis.

As for psoriatic arthritis cant imagine how painful that must be and hope all you good people seek ouit the best care and the best treatment from our somewhat erratic NHS or otherwise.

Regards

Vera

Hi

I found cutting out caffeine and all citrus helped somewhat, also drinking nettle tea as it's supposed to help the liver.

Accupuncture also helped with the joints, at the moment my nails are the best they've been for about three years.

hi vera2010,
try spelling that after a few lol
uzzi at least we was left something i think i would rather have had the dosh poor old dad didn't have any as nursing home took the lot lol
who knows they may come up with a cure as costing nhs a lot at the moment and we all know they wont have that lol
i'll keep in touch with you see how you're all doing
old achy lynne x

Laughalot

note the misspel after one small rose should have read
immuno............. .cant do the rest had another one.

Regard

Vera

My sister has this, trouble mainly with muscles, not much psoriasis, I have the psoriasis. She is treated with prednisolone in small doses and is seldom ill, just wil not try to move or even do a bit of dusting, leaves it to her daughter who works full time and has her own house to maintain. She can walk fast when there is something she wants to do, so I dont have much sympathy for her. She is not like so many of you, in pain all the time.

I am getting two knee replacements this year due to RA.
One in 3months time and second one 3months after that.
Over the years pain got worse till i couldn't take my own
weight when I stood up. use wheelchair at moment to get
about and chairlift to get upstairs. Hoping all goes well and
I can get about by myself later this year.

Emmax

My husband has Psoriatic arthritis with pustular psoriasis.
The arthritis part is a migratory type that moves around the body randomly affecting the hands, feet and major joints, in no particular order.
The psoriasis, he says, is the worst part. The soles of his feet and palms of his hands look awful, and it is now spreading over his legs, arms and back. It started quite slowly, but now seams to have got a rush on and is determined to cover him before he sees a dermatologist this coming Thursday. He hopes that the dermatologist will be able to do something to help ease the pain and constant itching. The arthritus part has misformed half of his knuckles and he says he feet feel constantly bruised. The first few knuckles he thought were sore due to knocking them opening doors etc, and therefor ignored them for a few years. It is only since the pustular psoriasis started that he learned he had the arthritis. He thought the pains in most his joints was from 20 years of motorcycling in all weathers.
If his skin gets worse I will be getting him out of bed wit a dust-pan and brush.
He has COPD, had about half of each lung removed because of re-occurring spontaneous pneumothorax and lung bullae, and also has meniere's disease.
On the older census forms he could possibly have been recorded as an idiot/ imbicile, because he considers himself lucky. Lucky that he can still see and hear, can walk, allbeit short distances, and still has his mind.
Looking forward to this years census and some of the stupid questions.

Heather

I read your story with a knotted stomach because it is so sad - so much pain and then I came to the end.and your husband considering himself lucky that he is able to see and hear, walk and is mentally alert. That is a great attitude and I hope this positivity will hopefully keep his psoriatic arthritis under control.

I have RA - nothing like your husband's suffering- and I told my doctor that i felt lucky because it was well controlled unlike some other people who suffer badly because they cannot tolerate some medicines and therefore don't benefit as i do. My GP was surprised at my attitude.

I have knoiwledge of psoriasis (my mother) and RA but to have them combined must be extremely hard to bear. I hope your husband's consultation goes well on Thursday and he gets some good treatment to alleviate his symptoms.

Regards

Vera

I suffer with Psoriatic arthritis..my hands are the worst hit

I feel for you all, I have osteoarthritis in both knees, my ankles and problems with my neck and shoulders due to wear and tear as well. i also have fibromyalgia which causes lots of aches and pains and poor sleep.

When I was young, around 10 or 11, I started to get a rash that turned into blisters on my hands and feet, mainly the palm of my hands and also my elbows. When the blisters came I couldn't bend my hands to wash myself or do anything much, it hurt so and the blisters would burst and then dry out into papery patches. The doctors never found out what it was and it happened around every six months or so through my school days and once when I was 22, touch wood, never happened again but I couldn't go to school when I had the outbreaks and the penicillin I was given at one time just caused a cold sore on my upper left side of my lip. I would get the sores in my mouth as well and since then I often have cold sores on that one area of my lip especially.
The pain I had then must be similar to that of your poor husband Heather, I hope the dermatologist can find some way to help him. What a positive man tho, despite all his ailments. I hope he can retain that positive attitude and things don't get any worse for him, and you.

A few weeks ago I had an odd itch on my palms and the feeling was as if the rash and blisters were returning, which scared me as I couldn't rely on my o.h. to help me the way my parents did when I was young, he would not realise how immobile my hands became and would expect his dinner cooked as usual! When I bent my hands the blisters would split and bleed when they were papery.

Good luck to all of you suffering psoriasis and similar. Maybe one day there will be cures for these things.

Lizx

Hi fellow sufferers, just a quick update:
Hubby saw dermatologist who confirmed the psoriasis, and added eczma and lichen planus (on the body and in the mouth) to the list of his ailments. Got to take biopsies to be absolutely certain. The specialist will write to our GP within ten days to advise what lotions and potions our GP can prescribe. Gave hubby nothing to help ease irritation/pains.
Bought a soft nail brush so that he can scratch his flakey skin without harming it too much (it is just slightly firmer than a baby's first hairbrush). He says it is better than sliced bread (remind me to throw the bread out if it has been used on his feet!). He is also using aloe vera cream on his feet and hands, and is getting some relief from that too.

Hope that you are all as well as can be expected,

Heather

Hello Heather

Heres hoping that whatever the GP prescribes improves or even gets rid of all three. Not one but three is really bad luck. May be your GP will add something to ease the pain.

Sliced bread for the feet - thats a good one - don't remember my mother ever trying that. I think she used some black tar ointment. Soft nail brush sounds much better and anything with vera in has got to be good!

Regards

Vera