General Chat

This is very upsetting but this girl needs support for her battle.

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A Norfolk MP has pledged to take up a mother's battle with the Secretary of State for Health and demand changes to medical guidelines on when infants should be given intensive care.

Since Sarah Capewell told the EDP in September the heartbreaking story of how her premature baby died in her arms after doctors refused to help him because she was only 21 weeks and five days into her pregnancy, her Justice for Jayden campaign to help other parents facing the same plight has taken off beyond her wildest dreams.

Her campaign put her in the national television spotlight on the This Morning show with Holly Willoughby and Philip Schofield and a huge groundswell of public support has led to more than 17,000 people signing her petition on the 10 Downing Street website.

Now Yarmouth MP Tony Wright is backing her calls for a change to medical guidance, which currently advises against babies under 22 weeks gestation being offered intensive care, and will be urgently seeking a meeting with Andy Burnham.

He said the story of how Miss Capewell's son Jayden had lived for two hours, crying out and even reaching out to her, with doctors declining to examine him or put him in intensive care, raised question marks over adhering to a rigid 22-week limit.

Mr Wright said: “It is quite clear that all the statistics point to a child born under 22 weeks having only a very small chance of survival. However, as far as I am concerned, if a baby is born alive everything should be done to keep them alive or at least ease their suffering.”

The intervention of doctors would also reassure mothers that everything possible was being done to help their baby, he added.

Miss Capewell, 23, who lives in Crown Road, Great Yarmouth, with her grandparents and five-year-old daughter Jodie, is now asking the public to help her give fresh voice to her campaign by releasing a Christmas musical CD.

Touched by her Justice for Jayden website, a number of artists and songwriters have offered her songs for the album and a major record company has now offered to cut the CD and distribute it at cost price.

Miss Capewell, who will be singing a track called Never Be Healed, said: “I have loved singing since I was four so it seemed natural to use music to take our campaign to an even wider audience.

“A number of recording professionals who have listened to the tracks reckon that some could be big hits if they were brought out as singles.”

However, to realise her dream of releasing the record to support families who lose premature babies, she must raise £4,100 for the production costs by the end of the month.

She appealed for people to support two fundraising events she has planned - a fancy dress evening at Caesar's Bar, in Marine Parade, Yarmouth, from 7pm to 2am tomorrow and a charity show at the Pavilion Theatre, Gorleston, at 7.45pm on Friday, October 30.

Donations to the campaign can be made via the website www.justice4jayden.webs.com



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Lizx

n

I have just signed the petition set up I think by jaydens mum and have asked my friends to do the same.
I have also joined the group that has been set up on another site.
I really feel for Jayden and his family, it is such a shame that nothing was done to help Jayden when he was born.

thanks Lisa

I've just been and signed Liz. I was so angry with the doctors when I read this story.

Dianne xx

Your very welcome Liz
xx

Dianne, I don't know how the nurses or doctors could let this happen, I thought their job was to save lives and/or ease pain and preserve dignity. No dignity for this little mite and others like him.

Lizx

n

n

I did it last night, Lisa sent me the address.

Hi Lisa....

Poor baby, what did that poor girl feel like, and how will she EVER get over the dreadful feeling of utter powerlessness?
Deanna X

hi have just signed the petition
god love him
how awful for his parents and him the poor wee mite
broke my heart to read his story xx

Dear Purple

Hello

Signing petition now.

Take care of yourself

Very best wishes
xx

thanks all, keep those signatures coming, this needs rectifying so no one else has to go through such dreadful pain and no more little ones have to die such a death.

Can we keep this nudged please?

Lizx

n

Signed petition Liz,

Had a bit of twubble wif it been from way down here - had to go on another link and I thought it did not work. But I got two e-mails to say thank you very much.
Looks like I probably signed it twice. I am a worry.


x
Norma

Norma, you made me laugh! Better you signed twice than not at all lol

Please can folk keep this nudged

Lizx

n

thats so sad for the sake of two days baby jayden wasnt helped

id like to think its gotta be down to the area , the lack of intervention,
poor baby and mum,
i send my support to get this altered,

i can only say that when i went into premature labour 18years ago with my son, several occasions , the doctors and nurses were fabulous, it was a military hospital, but the military doctors helped me all they could
and son held on till 4 weeks in the end before he arrived, he arrived safely and well, with the help of brilliant nurses and doctors
pity this cant always be the way for everyone

n

Julie, did you sign the petition?

You were very luck to get such good treatment but when a little one decides to arrive early, as my late daughter did, sometimes you don't have the chance to have things delayed and the baby comes quickly and without much warning. It's then that the medical staff should surely intervene if the baby looks as tho it is putting up a fight to live.
I hope all this campaigning is helping Jayden's Mum through her grief.
If she gets things changed, his short life won't have been in vain.

Lizx