General Chat

Thank you Lilly Ann for posting this (even if it did bring tears to my eyes) It can be a very lonely when no one knows what you are going through. When I was dx with lupus 3 years ago I was so happy, finally some one was listening to me and I was not the hypochondriac every one thought I was. I now know I have fibro,ra ,aps,sjogren's syndrome on top.I am sure that the list may get longer but I know that I am not making it up for the attention, I am ill. Where about's are you? if you are near to me I would meet up for coffee and a chat. Sue x Rainham Essex

I am not offended by the thread, having FM is very hard, it's something I will never come to terms with, it is the bain of my life and has ruined all I had planned in later life, please don't delete this thread as I'm sure it will help others, I'm glad some people understand how awful it is to have this for ever. Gillie XX :o))

Thanks Linda, I am ok. just having a bit of a bad day anyway and this hit home! I have printed some copies out and the first person to get one will be o.h.'s arrogant son who last time he came here told me I was lazy. I said to him then, I hope you never get this as I wouldn't wish it on anyone, but tomorrow when he visits I will say I hope you get this and know how it feels, if he starts making sarky comments again. The sun is shining outside and all I really want to do is potter out there with my plants, and enjoy the day, but because he has decided to visit, cos it suits him to come to Norwich tomorrow, I have to stay inside and tidy up, o.h. is working all day cos that is what he does, spends 6 days a week working, to make sure he has enough money to help out his sons when they come scrounging, yet he grudges me every penny and throws in my face what (little) he does for me. Hope you all have a nice weekend and can enjoy the sunshine. Liz x

Why cant you talk face to face ??? I will come see you :((((

I hope this doesn't come across in the wrong way, but I am so glad that I have found others that are suffering from this debilatating condition. The sad thing is that I can't talk to you face to face. Cos nobody I meet has ever heard of it. I feel like an alien.

awww Liz Hope you are,ok but I know how you are feeling have looked in the mirror at 2am when I cant sleep or hardly walk either crying saying please let me be able to do little things Take Care Linda xx

Hi Sue Hope you get sorted took me a long time and Im not so sure that the doctor is really interested now I asked to see a rheumatologist she said no its ok I can deal with this and yes you do have this take these pills Linda xx

That has just set me off crying! How I wish I could have that printed on my forehead so people could read it and try to understand what it feels like to have this constant exhaustion and pain. I am so fed up with being unable to live my life the way I wanted, this is not the way I saw things going for me, but then when I was in my early forties I didn't have this fog hanging over me. Liz

Thankyou Terri, You have just pointed me toward a possible answer to my symptoms. I too have been treated for anxiety depression and told its all in my head. Just started to see a new doctor who has taken me off the happy pills and is going to do tests. At least putting a name to it helps with how others perceive us.

Yes Lilly Ann Where do these people come from when they think that we read about it just to invent it But my they always come 2 weeks after with all the same symptoms. Saying told you I have those symptoms Linda xx

Hi forgetmenot blue ....Must just say I,m very pleased to meet it ... yes I know that makes you angry but ... WE now know what it is and so do others and thats good coz like a post says the dentist gives the patient a break to move, many years ago we where told we are lazy,mad,its all in our heads, we are making it all up...just like these ME suffers. So lets be pleased we are getting through to people Thanks for reading my point and giving it some time, do hope I,ve not upset you by saying it Sharleen

Hi Linda - that is the most annoying thing that has been said to me. 'You are reading too much into it. ' Couldn't you just.....

100% Accurate, I am NOT pleased to meet Fibromyalgia, I'd like it deleted from my life and anyone elses that suffers as I do. Gillie XX

How True And nobody understood me only hubby there are some that say think you read things then develop them .....That really makes me mad I say I dont bloody want this it found me Im so sick of taking pills for different things. Then within a couple of days they seem to have the same symptoms and say told you you are at a funny age, for gods sake I am only 59 and Ive had this coming on since I was 43 when I finished work. To everyone that suffers my heart goes out to you and I hope people start to understand Linda xx

That says it all, i am lucky with one of our Doctors he understands, but most people dont. Wendy.xxx

that is soooooooo true, last time I was at dentist and told him I had it, I was so surprised that he knew about it and kept giving me breaks so I could move

and I'm an Invisible Chronic Illness. I am now velcroed to you for life, Others around you can't see me or hear me., but YOUR body feels me. I can attack you anywhere & anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you & Energy ran around together & had fun? I took Energy from you, & gave you Exhaustion. Try to have fun now! I also took Good Sleep from you &, in its place, gave you Brain Fog. I can make you tremble internally or make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse & trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, told you are suffeirng from anxiety or depression, given a Tens unit, get massaged, told if you just sleep & exercise properly I will go away, told to think positively, poked, prodded, & MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day. Your family, friends & coworkers will all listen to you until they just get tired of hearing about how I make you feel, & that I'm a debilitating disease. Some of them will say things like 'Oh, you are just having a bad day' or 'Well, remember, you can't do the things you use to do 20 YEARS ago,' not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a 'Normal' person, & can't remember what you were going to say next! In closing (I was hoping that I kept this part a secret), but I guess you already found out... the ONLY place you will get any support & understanding in dealing with me is with Other People With Fibromyalgia. Written by Terri Been of Colorado.