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we Want To Fight Back
| Profile | Posted by | Options | Post Date |
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Lillyann | Report | 3 May 2007 09:55 |
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We could make badges. |
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Lillyann | Report | 3 May 2007 09:45 |
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We could start today - just by having a t-shirt printed with: FIBROMYALGIA & red crosses on the upper tender points. Trousers with lower tender points. (Never did like wearing dresses). |
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Lillyann | Report | 3 May 2007 09:42 |
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Couldn't we start our own website up? |
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Lillyann | Report | 3 May 2007 09:37 |
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Come on peeps Give us your support and any ideas. |
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Lillyann | Report | 3 May 2007 09:36 |
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I have done extensive research on the internet re Fibro and one of the things they suggest could cause Fibro is road accident - I was in a bad one when very young. I applied for my GP records last week and they have just rung to say they are ready!! |
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Lillyann | Report | 3 May 2007 09:30 |
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How about the girls in the birthday card club - we could raise funds with them. |
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Ladylol Pusser Cat | Report | 3 May 2007 09:30 |
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thanks mary great idea , i will be back in a bit xxx |
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Lillyann | Report | 3 May 2007 09:29 |
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We could book local community centre then contact local radio to advertise - if I heard somebody mention the word Fibromyalgia I would turn the radio up full pelt> |
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Ladylol Pusser Cat | Report | 3 May 2007 09:28 |
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yep brill idea lilly ann, ive got to pop off for a bit but will swap numbers with you in a bit , xx |
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Lillyann | Report | 3 May 2007 09:28 |
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I thought of making a dress and having a print of the body scanned onto it, with red cross marks on all pressure points. |
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Lillyann | Report | 3 May 2007 09:27 |
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How about: Putting a notice up in shop windows, in local papers asking if anyone who has or knows somebody to contact us. I am sure that anyone who has this will be as keen as us. The more in the group the stronger we will be. Then we could have a meeting and discuss ideas together. |
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MaryinSpain | Report | 3 May 2007 09:24 |
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Puss - so sorry to hear about your son. I cannot do much here in Spain but if it would help I could make some cards that perhaps you could sell. You could perhaps doi a bring and buy sale - do they still do that in UK? Anyway the offer is there if you want mate. Love Mary xx |
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Researching: |
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Lillyann | Report | 3 May 2007 09:18 |
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Puss I want to do something to raise awareness as close to home as possible. I haven't met one person who hasn't frowned when I've told them what I've got. |
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Ladylol Pusser Cat | Report | 3 May 2007 09:10 |
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would anybody be able to help me or give me ideas on how i could go about registering to a FM group so i could do something to raise money for it. please note i am not asking for money simply how i would go about this , also would anybody be interested in doing something with me like a sponserd something ideas too on thaT. ON THIS OCCASION i am prepaired to encounter inflicted pain ie; walking more than i would or anything is anyone interested. i feel i need to do something , my son would be the 4th person in my family to have this x |
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