General Chat

I take inhalers for my asthma yes, I take anti-histermine for my allergies and my hayfever. They are connected in the respect that this season pollen levels have been extremely high and with high pollen counts comes severe hayfever and hence I struggle to breathe so lungs are weaken making asthma worse.

With due respect Kemp there seems to be a little bit of nit-picking happening here - forgive me for appreciating an helpful thread,

but asthma needs inhalers and you dont take them for hayfever!! so how are they connected?

I have no idea Kemp he just said that everything is connected and trouble with my lungs was part of it. I'm not a medical person I just hear what I'm told. I know I have anti-hystermine to control rashes and psoriasis which are connected to hayfever and hayfever makes lungs worse cos asthma more chronic but hey I know not why the arthritis would be connected.

I,m totally confussed by this statement .............My son is under the leading hospital in this field and is one or the youngest person to be seen with this condition as it showed no signs of it until one day it appeared the next he had arthritis!!! usually takes 10 years to this stage his was 8 weeks ,.......and nott once has he been told theres a link to his lungs!!! Heart yes colesterole yes and kidneys yes!!!! But never lungs!

Mum has and her Mother had osteo arthritis and Grandad had rhumatoid so they need to rule them out and they done some bloods to see if lungs ok too as everything seems to be connected. He is confident its Psoriatic as affected areas all covered with psoriasis x

Why are they doing bloody test??

yes was diagnosed last week though they still ruling out other types this is the one pending blood results and xray. Psoriasis have been out of control recently and classified chronic so I got referred to specialist to find connection to that and my asthma and this is the outcome. funnily enough I had put up with pain for so long it had stopped bothering me - now it bothers me again x

Are you suffering with this then??

Thanx Kemp thats given me a lift its just in the mean time while they find best course of treatment x

What you must remember is theres little treatment and its an auto-immune disease so not much can be done about it ......

My son is 20 and has it appeared one day and within 10 weeks it was full blown ...will need a new knee and hip by the time hes 30!!

BUT there is a treatment in the USA the coat the joints with gold!

ty x

A treatment I had years ago for RA. when it was at its worst. was for me to plunge my hand in an ice bucket and keep it there for a long as possiblre. V uncomfortable but it did give relief for swollen wrists and fingers.

I think they have moved on since then for RA but sadly it seems not a lot of progress on the psoriasis.

Regards

Vera

Sorry for not getting back earlier mind this thread isn't about me, just the infliction so to speak.
I so feel for all and so scared by it.
My Uncle has RA and is suffering bad, I to be honest didn't know which or what but I am learning.
I have always had early stage arthritis in my knees from my teens but never gave it much thought.
Heather I feel for your OH and admit that my knuckle joints I just out down knocking them, mutts nibbling, too much typing ..alas my beloved engagement ring and wedding ring are often off now.
With the psoriasis I don't know what to say like Jgee I can't get in a bath because I don't have one .unlike most I can't do the tar treatment they prescribe because my ruddy allergeric skin won't allow it.

At the moment though I am lucky if I don't stress the psoriasis may stay at bay and if I stay warm and active the joints are good. lol so why when it's warm are the joints swollen.

Still Good Luck to fellow sufferers and partners
take care x

morning all ...as i have suffered for years ..the only relief i get from itching is to grease up.. i feel like a greasy chip .. liquid parafin is good also ..just had some more ointment ..called epaderm..its as eased it as long as i maintain it..but get sick of sitting in grease ....also found sitting in a bath with bath oil from avon.. called skin so soft..but i cant have a bath now .. due to other problems...

you would think some cure would have been found by now.. every time i see a doc ..they always asked if ive had a sore throat ..maybe a connection there ..

jgee

Hello Heather

Heres hoping that whatever the GP prescribes improves or even gets rid of all three. Not one but three is really bad luck. May be your GP will add something to ease the pain.

Sliced bread for the feet - thats a good one - don't remember my mother ever trying that. I think she used some black tar ointment. Soft nail brush sounds much better and anything with vera in has got to be good!

Regards

Vera

Hi fellow sufferers, just a quick update:
Hubby saw dermatologist who confirmed the psoriasis, and added eczma and lichen planus (on the body and in the mouth) to the list of his ailments. Got to take biopsies to be absolutely certain. The specialist will write to our GP within ten days to advise what lotions and potions our GP can prescribe. Gave hubby nothing to help ease irritation/pains.
Bought a soft nail brush so that he can scratch his flakey skin without harming it too much (it is just slightly firmer than a baby's first hairbrush). He says it is better than sliced bread (remind me to throw the bread out if it has been used on his feet!). He is also using aloe vera cream on his feet and hands, and is getting some relief from that too.

Hope that you are all as well as can be expected,

Heather

I feel for you all, I have osteoarthritis in both knees, my ankles and problems with my neck and shoulders due to wear and tear as well. i also have fibromyalgia which causes lots of aches and pains and poor sleep.

When I was young, around 10 or 11, I started to get a rash that turned into blisters on my hands and feet, mainly the palm of my hands and also my elbows. When the blisters came I couldn't bend my hands to wash myself or do anything much, it hurt so and the blisters would burst and then dry out into papery patches. The doctors never found out what it was and it happened around every six months or so through my school days and once when I was 22, touch wood, never happened again but I couldn't go to school when I had the outbreaks and the penicillin I was given at one time just caused a cold sore on my upper left side of my lip. I would get the sores in my mouth as well and since then I often have cold sores on that one area of my lip especially.
The pain I had then must be similar to that of your poor husband Heather, I hope the dermatologist can find some way to help him. What a positive man tho, despite all his ailments. I hope he can retain that positive attitude and things don't get any worse for him, and you.

A few weeks ago I had an odd itch on my palms and the feeling was as if the rash and blisters were returning, which scared me as I couldn't rely on my o.h. to help me the way my parents did when I was young, he would not realise how immobile my hands became and would expect his dinner cooked as usual! When I bent my hands the blisters would split and bleed when they were papery.

Good luck to all of you suffering psoriasis and similar. Maybe one day there will be cures for these things.

Lizx

I suffer with Psoriatic arthritis..my hands are the worst hit

Heather

I read your story with a knotted stomach because it is so sad - so much pain and then I came to the end.and your husband considering himself lucky that he is able to see and hear, walk and is mentally alert. That is a great attitude and I hope this positivity will hopefully keep his psoriatic arthritis under control.

I have RA - nothing like your husband's suffering- and I told my doctor that i felt lucky because it was well controlled unlike some other people who suffer badly because they cannot tolerate some medicines and therefore don't benefit as i do. My GP was surprised at my attitude.

I have knoiwledge of psoriasis (my mother) and RA but to have them combined must be extremely hard to bear. I hope your husband's consultation goes well on Thursday and he gets some good treatment to alleviate his symptoms.

Regards

Vera

My husband has Psoriatic arthritis with pustular psoriasis.
The arthritis part is a migratory type that moves around the body randomly affecting the hands, feet and major joints, in no particular order.
The psoriasis, he says, is the worst part. The soles of his feet and palms of his hands look awful, and it is now spreading over his legs, arms and back. It started quite slowly, but now seams to have got a rush on and is determined to cover him before he sees a dermatologist this coming Thursday. He hopes that the dermatologist will be able to do something to help ease the pain and constant itching. The arthritus part has misformed half of his knuckles and he says he feet feel constantly bruised. The first few knuckles he thought were sore due to knocking them opening doors etc, and therefor ignored them for a few years. It is only since the pustular psoriasis started that he learned he had the arthritis. He thought the pains in most his joints was from 20 years of motorcycling in all weathers.
If his skin gets worse I will be getting him out of bed wit a dust-pan and brush.
He has COPD, had about half of each lung removed because of re-occurring spontaneous pneumothorax and lung bullae, and also has meniere's disease.
On the older census forms he could possibly have been recorded as an idiot/ imbicile, because he considers himself lucky. Lucky that he can still see and hear, can walk, allbeit short distances, and still has his mind.
Looking forward to this years census and some of the stupid questions.