General Chat

ok thanks daff , no hurry honest xxxxx

Hello, lovely... yes, they were pretty wonderful.... and you as well, keeping my poor hubby on the straight and narrow, lol we won't mention the CDiff then???? wmsl!!

Yep, I was one very lucky bunny!! Mwah!

Puss, ok, will do...... I'll look tomorrow, but give me a reminder.....

Love

Daff xxxxx

Hello missus :-))

I would guess I know probably as much as anyone outside your family as to what you went through. Each bloody set back and a new course of treatment, then more meds to counteract the new treatment which was working but giving side effects...lol and that's just the mild part.

I know how much you think of the staff and especially those with a sense of humour and compassion. That's in addition to their dedication.

You were one very lucky girl and we are all thankful that you had a great team looking after you.

Sue xx

aw just call me puss xx lol xx

HI Ladylol Pusser Cat (blimey, hope I got that right)!
Nice to meet you too.
Strong, white, no sugar thanks. lol.
Cath

Hello catherine nice to meet you, i collect the money for the tea and coffee on a wednesday how do you have yours lol welcome xx

daff i got told i have ostearthritis, i have to go back in 10 days as ive got to lose weight as my knees have gone somewhere , i like to think myself as district nurse lately but iknow nothing nothing lol i was wondering if you find a site for me like the one for stepdad please xxxxx easy reading x

You're welcome, Catherine... yes, this site is what the members make of it... everyone helps out in one way or another, whichever board you are on. Good luck with your research. xxxx

Puss.... fingers crossed.... and one step at a time.... the waiting is dreadful, I know... at least with mine it was all so quick... didn't have time to worry, just had to get on with the treatment. I'll keep him and your mum in my thoughts.... and you too, take care of yourself first and foremost, do you hear? xxx

Love

Daff xxxx

Hi Daff,
nutters you say, well sure I will fit in then, being one myself.

I am already indebted to many of them for help and advice.

Thanks for welcome x

aw daff thats lovely well done you all xxxx, my step dad had his pre op today just hoping its not gone to the lymph nodes but there taken them out anyway xxxx

Thank you Cath, and welcome to the boards...... Most of them are nutters, you know....... ;¬))

Actually, they are a brilliant crowd, and definitely there for you when you need them most, the daft lot!

Love

Daff xxxx

Hi Daff,
Im new to these boards and dont know many people yet but that is fantastic news.
Glad you are making a good recovery and 3 massive CHEERS for Cardiff university,
very best wishes to you,
Cath

sorry.... twitchy button digit!! ;¬)) posted twice

Love

Daff xxxxx

Absolutely, Ann xxx

Mwah back at you, Claire, you mad bovine, you xxx

Aw Jane, thanks... it was the sunburn, really... and I haven't been able to bring myself to drink any more since! No joking, I just can't........ I do hope that is fixed by the time we have the Newport meet! :¬))

Emma, they were, and are, wonderful... my own Top Doctor Man is very involved in the research, and is brilliant.... and lovely too.

Teresa, thank you... I was diagnosed in October 2008, and lost much of the next 6 months, lol.... it was a very difficult time for all my family and friends... I was ok, cos they stuffed me so full of pills to manage the side effects of pills to manage the side effects etc etc that I was comatose and as dopey as a dormouse most of the time. ;¬))

This daft lot on here kept my spirits up with a series of madcap adventures... the first two support threads were deleted... first accidentally by GR second because some sad soul complained about a post! The third is still running on General.

I do believe there is a charabanc full of GR members looking for the hairy caterpillar eyebrow farm, when my eyebrows went lol....... they got lost! ;¬))

Which hospital does your friend work at... pm me if you like, I have a sister in one of the out patient clinics there (nurse, not patient)

Love

Daff xxxxx

great news Daff - glad I live in Cardiff for lots of reasons!!

Ann XXX

******* CONGRATULATIONS*********

To Cardiff for all of their hard work & Thanks fer making Daft well again
xxxxxxxxxxxxxxxxxx


MWAH to Dafffffffff fer bein a Guinea Piglet xxxxxxxxxx


Claire xxxxx

Long may they continue Daff. Thank goodness you live where you do,as you say you were in the best place.
We all followed your illness and recovery,and it was great to see you at the Peterborough Meet ,and to see how well you are now,and how much you enjoy life and a little of the red stuff lolol

Hi Daff,
Thats great news and especially to yourself as it
is so important that recognition be given to these
wonderful people. Where would we all be if we did
not have these dedicated people. Emma x

Well done to Cardiff University and the work of all the staff.

I havnt been on genes for very long Daff so didnt know you had been unwell.

You sound like you are vey fortunate to have a centre of excellence where you live and I hope you are progressing well.

Have a work friend who moved to and works in Cardiff hospital. She is a sister in the eye unit and loves living in the city.

Teresa

I just read this, and I am so so proud of them!!


****Over 2,000 adults are diagnosed with AML every year

Cardiff University is being named the UK's first Leukaemia and Lymphoma Research centre of excellence.

It is part of the national blood cancer charity's plans to focus its investment in leading research institutions.

Cardiff is looking at the two most common forms of adult leukaemia - acute myeloid leukaemia (AML) and chronic lymphocytic leukaemia (CLL).

Current research aims to allow doctors to predict who will respond to treatment and how effective drugs are.

The charity has invested more than £1m at the university's school of medicine so far this year and around £6.5m in the last decade. ****


The whole article is available here:-

http://news.bbc.co.uk/1/hi/wales/south_east/8688787.stm



Many of you have supported me during my fight against Leukaemia, and I have always maintained how lucky I have been with the support I have had, and also for the timing ... I got this dreadful disease at the best time for me agewise, and also with the type of treatment that was becoming available... I wouldn't have had this level virtually anywhere else in the UK... and I am still forming part of a 30 year trial.... my bone marrow biopsy's are all recorded, and some of each one is stored for future reference. Some people with AML are able to be told which genes have become faulty... sometimes this means a good prognosis, other times it is bad. I fell in the *normal* range, which means they still haven't found a cytogenic reason for the mutation.

I am soooo proud of that team, they were, and are brilliant, and soooooo deserve this recognition.

Because of them, I am here today.

Love

Daff xxxxx