General Chat

Thank you to those who have read and commented.

Just to say that Caroline is 31 this year :-)) She goes drinking, clubbing and tries to live as normal a life as possible. She has good days and bad days but she is so positive most of the time. Her speech is affected and she finds it frustrating that some people do not take the time to try and understand what she is saying. Most days speech isn't too bad but stress makes it worse. She holds down a full time job (with assistance) and we are all so proud of her.

She has suffered terrible discrimination though which I find very distressing as her Mum. She was ostracised by fellow student nurses when she went to Uni in case they 'caught' MS themselves.

All I ask for is people who didn't know what this terrible illness entails is to think a little more when they meet someone who has MS.

Thank you so much

Sue xx

n

I work for a lady with MS. She is now wheelchair bound, has no use in her arms/hands etc. She is able to eat (her husband feeds her). Mind wise, she is still very much on the ball as she always was. A carer goes in each morning to get her showered etc. I don't go there if I have a bug/cold etc for obvious reasons.

She is such a lovely lady and has lost none of her sense of humour. She just gets very frustrated that she can no longer do things for herself.

Sorry to hear about your daughter Sue.

THERE AREA LOT ON THIS WEBSITE ALONE

WHO ARE FRIGHTENED TO TELL THEY HAVE MS
ITS SUPORT AND OUR FRIENDSHIIP THEY NEED

Well meaning nudge: it's important.


Jac xxx

nudging for Sue...

My mum was diagnosed with this c1945 when she was 31. (it was called 'disseminated sclerosis' then). It began with loss of vision in one eye.

Two years later I was born.


She was in remission for several years before becoming chairbound. She was a fantastic fighter despite her handicaps and lived with great dignity to the age of 87.

There is always hope.

MS Week 27th April - 3rd May 2009
MS Week is a chance for the MS Society to get loud about multiple sclerosis (MS), raising awareness of it by reaching out to people who don't know much about it.

Sorry to hear that Sue
Have to admit to being one who does not know a lot about this disease
xx

I am posting this as my daughter Caroline is a sufferer, she was diagnosed at just 18. Please keep nudged for me for today, thanks

Sue x

'Few know multiple sclerosis facts'
Last Updated: Tuesday, 21 April 2009, 07:18 GMT- Search: Multiple sclerosis awareness

Few people know that multiple sclerosis (MS) mostly strikes people in their 20s and 30s, according to a new poll.
A survey for the MS Society found only a quarter were aware that people aged 25 to 34 were most likely to be diagnosed.
Four out of 10 (40%) members of the public could not name a single symptom of MS, which include loss of sight and mobility, fatigue, numbness, bowel and bladder problems, muscle stiffness and spasms.
Some people thought MS led to brittle bones, bad teeth, phlegm and loss of appetite.

The poll of more than 2,000 people also found 6% attributed MS to "public health issues" such as obesity, poor diet, smoking or germs.
Meanwhile, four out of 10 (40%) thought all people with MS ended up in a wheelchair whereas just 20% do.
MS Society chief executive, Simon Gillespie, said: "This survey gives us the clearest picture yet of what people know - or don't know - about MS, and the results are a cause for concern."
The survey was released ahead of MS Week which runs next week.
TV presenter Lorraine Kelly said: "As I have a relative with MS, I know from personal experience that there are myths and misconceptions which make life even tougher for people living with the condition. I would urge everyone to make an effort to find out what MS really means to those who have to live with it day in and day out."
More than 85,000 people in the UK have MS.