General Chat

NO TWO CASES ARE THE SAME

LOVE TO ALL

Thank you to everyone who has read, added and nudged :-))

I think the purpose of this thread has now been served.

I hope some people have a little more understanding of MS now.

I would like to send my very best wishes to other sufferers and I sincerely hope they receive the support which they need and deserve.

Sue x

Edit: Please don't forget that there are different types of MS and some are more benign than the aggressive type that receives the most publicity.

FACT..............
What does research suggest?
Research suggests that:

* the overall life expectancy of people with MS is only slightly lower than that of the general population.
* since the 1960s, increase in life expectancy for people with MS has grown more rapidly than in the general population.
* improved health care for people with severe MS has been effective in reducing premature deaths.

I know only to well the havoc MS causes to young people.

My cousin was diagnosed with MS when she was pregnant with her second child. She was 26 years old. For 5/6 years there were no outward symptoms and then gradually she started to show signs of this terrible disease.

She had several severe episodes and would have to spend time in hospital and then it would go into remission but always leaving her much worse.

She eventually had to virtually live in her wheelchair completely dependent on others for everything.

She died last year at the age of 52.

Sue.... I live with the hope that a cure will be found in the near future.

My heart goes out to Caroline although I know that neither of you want sympathy ......just understanding.

Jean.

N for SueM
xx

Thank you for this thread, Sueping. There were many things I did not know about MS and your daughter's fortitude and love of life is a lesson to all us moaning minnies! BC XX

MS Awareness Week is also MS Cake Bake Week to raise money.

If you are interested check out the MS Society site.

n

nudging for SueM
Jenxx

Very similar to my Mum .....

She has little control over her left side. When she walks she has to conciously lift her left leg or it would just drag (I think) to the point where it's like she's going upstairs.

Her left arm and hand sometimes takes on a mind of it's own. Taking an egg of the frying pan is a feat in itself! Mind you, I have seen a fried egg travel from one side of the kitchen as a result of her arm jerking!

The sudden loss of balance is the thing that really worries me though. If it should happen on the stairs .....
I offered to sort out a stair lift for her. Her response? "Only disabled people need those...."

But like your daughter, she lives life!

We have family friends and the wife has had MS for about 20 years. Their daughter was one of my bridesmaids as a little girl and sadly she has MS too now. It seems they have a really rare inherited form of the disease. Both of them are in wheelchairs and the husband/father of the family cares for them both.

It is strange because if I stop and think about it I know quite a lot of people with MS. I live in a small village but there are several people who have the disease who live in the village. I also know some in Guiding and friends online. There are more cases than a lot of people realise.

Sue

Thank you Tony :-))

Some of Caroline's symptoms:

Loss of sight bilaterally for between 12 hours and 14 days
Loss of feeling in her mouth - danger of scalds
Loss of feeling anywhere on her head and body
Tremors
Acute pain in limbs and abdomen
Weakness in hands and legs
She is now colour blind in one eye
Loss of balance
Affected speech
Fatigue
etc., etc.,

BUT

she lives life!!!!!!!!!!!!!!

Sue x

My best wishes to your Mum, Tony. She sounds an amazing lady,

Sue x

I heard something the other day which stuck in my mind.

"I am not measured by my disabilities but by the way I handle them".

So true.

Sue x

Hi Sue,

My Mum started the symptoms of Multiple Sclerosis when she was about 18. At that time not a great deal was known about the illness, and after a whole raft of treatments and tests she was diagnosed with MS.

She is now in her mid 70's and like most sufferers has good and bad days. On a good day she still drives. She has only in the last year started to use a walking aid (a little three wheeled trolley) and doggedly refuses to give in to the debilitating effects of the disease. On a bad day she will just fall flat on her face! Poor soul is just a mass of bruises, and as she ages it takes her a bit longer to recover from the bad days!

However, she manages the illness very well and counts her blessings that she isn't as bad as some with the disease, and it takes her nearly a week to recover from visists from her grandchildren!

I am not surprised at the results of the polls. It is a very strange indiscriminate disease which attacks different people in different ways. I once heard some people in a lift when I was on holiday talking about the lady that was drunk from morning to night. A little while later, I realised they were talking about my mum! I was incensed, searched them out and told them a few home truths - I was about 12 at the time, but that has stayed with me all those years.

Thank you Sue for doing this in a bid to raise awareness, and please pass on my very best wishes to Caroline.

X

Thank you :-))

Just shows that a person's disability doesn't define their personality!

Sue x

I know two people with MS and I have to admit I don't know a great deal about it. Both people I know are generally in good health and manage very well although I notice that one uses a walking stick on occasion. I wish your Caroline the very best, Sue. I'm sure you have every right to be proud of her.

Sue xx

nudged...

your daughter sounds amazingly strong. you must be so proud of her!

mamiddau,
xxx

nudged

I am glad to hear Caroline is still up there with the rest Sue and doing her own thing. :}




Now I know of 3 in the same family how suffer this,,,,one only has a mild case which was labled MS and has progressed no further,,the eldest is none active and housebound,,the middle one unmarried is now in residential care ages are,,63,61,and 58,but all have great attitudes........
Its never been discovered why 3 siblings should suffer MS........