General Chat

OHHHHHHH I am unique :-D I'm in the 5% category :-P just my luck. AH HA I know I wasn't fat I have poor muscle tone, and there ain't nothin' I can do about it.. I also can't walk a straight line if my life depened on it. and spelling it another issue :-D

I always thought there were 5 types, but want do I know! I talked to my doctor, and yes the symptoms do get worse as you get older. GREAT :-| I have enough problems now

David - thank goodness, I thought you forgot who/what you were, for a moment.

My best friend's eldest son was affected by CP at birth and is now is his 40s.

He is less able bodied on one side and has some cognitive issues BUT.....

he has always been encouraged to be the best he can be. He is married and holds down a job (with support). I love him to bits.

His younger brother took him to a Judas Priest concert and he threw a massive epi, the ambulance was called and he refused to go with them as he didn't want to miss the rest of the gig....lolol

My eldest has MS and enjoys life to the full and I do the best I can with my problems.

People who judge should be ashamed and I'm not backward in coming forward to say so.

EVERYONE has at least one medical niggle or a big issue. Doesn't take much to turn a niggle into a crisis and they should remember that.

My friends and I call ourselves 'speshul' because we are unique, remember that and celebrate it :-)

Sue x

I will second your last statement Sharron. :-)

I think this is a good way of Shy turning a negative into a positive.

It is always a good thing to pick up a bit more knowledge and Shy has given us the opportunity to do so.

Maybe our newly acquired knowledge will pass on to others towards a better understanding of the problems that others face.

Yes I thought the child in leg irons was for polio Det.

Interesting to know the different types of CP and I am sure that Shy won't mind. <3

As long as Shy doesn't object to using her thread as an opportunity to educate ourselves

http://www.cerebralpalsy.org.uk/cerebral-palsy.html

What are the different types of Cerebral Palsy?

There are three types of Cerebral Palsy, not including ‘mixed Cerebral Palsy’ which is a mixture of different types. They are called ‘Spastic Cerebral Palsy’, Ataxic Cerebral Palsy, and Athetoid Cerebral Palsy.
...

Wasn't the little girl in legs irons collecting for Polio??

I have looked up ataxia and find that the word I have been reported for using is the correct word for the other type of cerebral palsy.

Oh dear, I hope I don't stare but I am always interested in how people cope with doing things (in my element with Fred losing the use of one side!) and I know I do sometimes watch too closely. One that particularly impressed me when I was doing a PRS job was the man with one hand who played guitar.

When I was a child and sat next to David, he would not have been the only person having to find ways to cope with life. The men had been to war and were often missing a part of themselves and, of course, work was far more dangerous then.My uncle had had his middle three fingers of one hand shot off and I would never miss an opportunity to watch Uncle Jack roll a cigarette or Mr Hedger next door, who had also lost three fingers in a drive belt on a threshing drum, sharpen his fag hook.

RMS I am not sure that I do have the wrong idea of the type of CP you have as I am pretty certain that in our Lifestyles committee we had two people who had all the symptoms of Ataxic CP, both were adults over retirement age the male I mentioned before who was physically 'disabled' and a lovely lady who was in a wheel chair and probably in her 70s. She wrote beautiful poetry and had a great sense of humour. They were both productive members of the committee. But yes, they drew attention because of their physical problems. But that is not always malicious, sometimes it is misplaced curiosity I think. That is why people seem to stare, nobody has ever told them it is rude to stare I think.

Good morning RMS, the woman in the Avatar is my wife of 37 years Ellen <3 <3

I suppose children stare because they are seeing somebody who is moving or behaving in a way they have not seen before. They are learning how to be people and need to be able to weigh up others in life to stay safe.

We all do it but have learned to be more discreet.

You'd have loved me (not) as a LSA Shy - you wouldn't have got away with snoozing - why should you when I wanted to!! :-D
As for being unable to participate in creative writing - no way would you have got away with that!!!

I looked after a boy with hydrocephalus and spina bifida - I shall call him Tom.
Tom had physical disabilities, not mental - what he learnt was what he learnt.
Unfortunately, all through primary school, everything had been done for him. When he was at secondary school, 'they' decided he should have a laptop, as, apparently, he had trouble writing.
He didn't - it's just that everyone at primary school had done his work for him, and he didn't see why this should change.
I pointed out to 'the powers that be' that other (non-statemented children - due to lack of funds) had more need for help in writing than Tom.

Tom was also not as clever as his Primary school records had shown - he'd had an awful lot of help - which I find patronising - you're in a wheelchair, so what - that doesn't affect your mental capacity.
I was then not allowed to come to his reviews as I was negative (delete that and insert honest).

I left this school, but met Tom on a train a few years later. Someone had convinced him he could become a forensic scientist.
He was going back to University to re-take his first year exams.
Anyone else who had failed the first year at university would have been asked to leave.
I was very upset for Tom.
All through his school life he had been an 'example' of disability, and all the way through, he'd been told a lie, and patronised.


People will stare at anything now. Personally, I find unusual rain hoppers interesting, so spend a lot of time looking up.
It's amazing, if you stand still and look up, how many people will join you (with no idea of what you're looking at).
Then you walk away and leave them standing, looking up. :-D :-D

Sharron - two posts reviewed, that must be a record for you :-)
David - I hope you don't mind me saying this but you like look like a woman, is there something you would like to share with us. ;-)

Oh ah wow, but you all have the wrong idea about the type of cp I have. I have ataxia and that is all I will say.

I went to school in the 1970's to a 'normal' school. They had no idea what I could do or how to 'handle' me. Should they push me to do more or just let me be. I remember in our creative writing class (grade 3 think I) I got away with just writing down the title and putting my name on the paper. I even got to have a snooze in the afternoon. :-D My Mum was not amused. My grade two teacher even had a nervous breakdown. :-O

Because I grew up in a time where handicapped people were misunderstood, I don't trust anybody. Maybe I am reading into their stares more then is there. But then why are they staring at me in the first place. :-S

Back in the fifties, I started school with a bot who was never expected to feed himself. I don't know if he did ever feed himself but I know he could lift a pint and he think he has now retired from being a carpenter and I don't think he teaches ballroom dancing any more.

He was with us through primary school as was a girl who had CP but did go to a special needs school at eleven. He was not that far behind anybody else in class and some of his need for special education may well have been because he was partially deaf and that his hands were not particularly steady which made writing difficult.

We were both members of the elite squad of maypole supporters. We,who were utter rubbish at dancing round the thing, would have to stand in the middle to stop it falling, or being pulled, over.

RMS I hope thatyou are feeling more positive today. You have lots of friends on GR who would stand by your side when these stupid children stop and stare.

In the U.K. we now have an "Inclusion" policy, i.e. children with all types of developmental difficulties, be that mental, physical, sensory or emotional, are often given a place in "main-stream" school. This should be with any extra help they require.

This should mean that most children have school friends that previously would have been sent to special schools. i.e. excluded from main-stream school.

I don't know what the education policy is where you live. But would expect that people generally to be better informed than they were.

Is it oftren the same children? If so perhaps they have some sort of difficulty? Are these children always without adult supervision? If with an adult, I would have hoped that the adult would correct their behaviour.

However, if the children are VERY young, perhaps they stare purley because of their innocence. Seeing someone, especially a grown up, whose movements are different to those of other adults they know, could be bemusing.

To them it could be like seeing a Kingfisher in a field of sparrows.

Take care

'Scope' became 'Scope' in 1994.
Interesting article:
http://www.bbc.co.uk/news/blogs-ouch-26788607

Yes, but they were not always called 'SCOPE'and especially not in the era to which I was referring.

Do you remember that little papier mache girl in the leg irons we used to love to kick as we passed? She wasn't collecting for SCOPE.

I don't think that MIND is not particularly relevant to cerebral palsy

Scope is a shop I've frequented often Sharron, nice people.
MIND is another that is extremely helpful <3 <3

If this happens again, Shy, tell 'em you will get your gr pals after them!

Stay strong, and positive

Lizxx

RMS never ever feel ashamed of YOU!!....those who look are insignificant in your life, you do not have to feel the way to such ignorant people.

Your strength and integrity is greater than those who judge ....your whole reason for being you is being the person you are on the inside and out.




<3 <3 <3 <3

RMS take no notice you are who you are. Tell them to go fly a kite (polite to what I would really say) <3 <3